Resource Library - Organizational Restructuring
National Center for Innovation in HIV Care
This resource library is a compilation of articles, webinars, and websites that are pertinent to ASOs and CBOs considering organizational restructuring or adopting service models that can improve care for clients along the HIV continuum.
- Organizational Sustainability Resources
- HIV Care Continuum Resources
- Additional Resources
- Sector Transformation and Organizational Sustainability
A webinar (11/13/14), providing an overview of sector transformation within the HIV/AIDS service sector and what that means for the future of HIV/AIDS service organizations.
- Enhancing the Sustainability of Ryan White-Funded AIDS Service Organizations and Community-Based Organizations
An issue brief reviewing the impact of a changing U.S. health care system on HIV care access, and presenting a Sector Transformation model, focusing on the HIV/AIDS service sector. The brief includes options available to ASOs and CBOs to respond to and thrive off of the changing sector.
- HIV/AIDS ASO and CBO Stability and Sustainability Assessment Report
A report (9/13) exploring the impact of changes in HIV/AIDS prevention, funding shifts, and treatment advances on the organizational stability and sustainability of ASOs/CBOs, and providing recommendations for ASOs and CBOs in light of the report.
- Sustainability: The State of HIV/AIDS Service Organizations
A presentation (12/16/14) serving as a companion to the HIV/AIDS ASO and CBO Stability and Sustainability Assessment Report. The presentation describes the current state of HIV/AIDS prevention and treatment efforts, advances, and funding shifts, and ASO/CBO fiscal health, capacity, and leadership, and offers recommendations for sustainability strategies.
- U.S. ASO Finder
A search engine, hosted by TheBody.com, for U.S. ASOs. Searches are based on zip code and can be filtered by services provided.
Mergers and Affiliations
- AIDS Action Committee & Fenway Health: A New Vision for HIV/AIDS Services and Advocacy
This case study outlines the AAC and Fenway merger, and includes discussion of the rationale, catalyst, and challenges of the merger.
- Strategic Restructuring for Nonprofit Organizations
A book outlining the benefits, costs, and challenges of strategic restructuring partnerships, and discussing the future impact of strategic restructuring on the nonprofit sector. (2003)
- The ASO Merger Series
A series of briefs and videos highlighting key principals of mergers and offering practical lessons and valuable checklists to guide readers from assessing potential mergers to implementation and integration.
- The Nonprofits Mergers Workbook Part I: The Leader's Guide to Considering, Negotiating, and Executing a Merger
This book provides tools for board members and executive directors considering a merge, and discusses finding a partner for a merger, assessing readiness, negotiating the best path, and budgeting and implementation. (2008)
- The Nonprofit Mergers Workbook Part II: Unifying the Organization after a Merger
This book provides tools for board members and executive directors around achieving integration after a merger. (2004)
- Asking the Tough Questions: Organizational Self-Assessment toward Growth vs. Responsible Closure
A webinar featuring leaders from various organizations, who discuss their processes of deciding to strategically restructure and provide "lessons learned" from their restructuring experience. (2/10/15)
- Organizational Change to Strengthen the Continuum of Care for PLWHA
A webinar exploring the impact of mergers on treatment outcomes for people living with HIV/AIDS (PLWHA), and drawing from the experiences of leaders from two organizations who successfully navigated the merger/affiliation process. (3/25/15)
- Colorado AIDS Project: Merger Creates a Unified Voice for HIV/AIDS Services
This case study, published by La Piana Associates, gives an overview of five Colorado ASOs coming together to form the Colorado AIDS Project.
Boards, Billing, and Business Planning
- Hit the Ground Running: A Resource Roadmap for RWHAP Core Medical Providers
An online learning tool, published by the CRE TA Center, assists Ryan White HIV/AIDS Program (RWHAP) providers in navigating the resources that deal with contracting, billing and enrollment with Medicaid and Marketplace Insurance Plans.
- Three Ways Business Planning Can Support Strategic Restructuring
An infographic outlining the role of business planning as a catalyst of strategic restructuring, a process to inform negotiations, and a guide to restructuring implementation.
- Getting Your Board on Board
A webinar (3/1/15) exploring the role of boards in organizational restructuring, specifically focused on the HIV/AIDS service sector, and discussing developing a shared vision with a board.
- Nonprofit Strategy and Business Planning: A Fresh Look
This article outlines the difference between strategic planning and business planning, and explores when to use each.
- Pharmacy Models for ASOs & CBOs: Increasing Revenue and Improving Treatment for Clients
A webinar (5/18/15) exploring the financial benefits of ASOs/CBOs integrating pharmacy services into the scope of their work, and describes different pharmacy models for ASOs/CBOs.
- 340B Drug Pricing Program
This HRSA webpage provides an overview of the 340B drug pricing program, in which RWHAP clinics are able to participate.
Overview of the HIV Care Continuum
- HIV/AIDS Care Continuum
This website, hosted by the U.S. government, offers an overview of the HIV care continuum, why it's important, and how it's being used. The site also provides links to other resources on the continuum.
- Understanding the HIV Care Continuum
This CDC fact sheet (12/14) offers an overview of the HIV continuum, how the CDC monitors the continuum, and how the continuum can be used to monitor progress.
The AIDSVu website maps the prevalence of HIV in the United States on national, state, and local levels, and allows users to filter HIV prevalence data by race, ethnicity, sex, and age, and shows how HIV prevalence is related to various social determinants of health, such as educational attainment and poverty.
- HIV Continuum
The first interactive website to map HIV care continuum outcomes for people living with HIV, and captures data from various U.S. cities.
HIV Prevention, Testing, and Diagnosis
- PrEP Kit
This toolkit offers basic information on PrEP (including a resource list) and how community-based organizations can implement use of the medication.
- Implementing Syringe Services Guidance: Tips, Tools, and Technical Assistance
An interactive webinar features a panel of experts who answer questions on the new CDC Syringe Services Guidance, using federal funds for syringe services, and more.
- Getting to Zero: Building Capacity: Moving Prevention Forward
Provided free of charge for CBOs that provide HIV prevention services, Getting to Zero is capacity building assistance and implementation training on Personalized Cognitive Counseling (PCC), Developing and Implementing PrEP/PEP Programs, and Linkage to Care for Clients in a Non-Clinical Setting.
- Can We End the Epidemic? An Update on HIV Screening, Prevention, and Treatment
A webinar (9/17/15) discussing the existing barriers to effective HIV screening, prevention, and treatment, and describing methods for overcoming these barriers, including new research findings and practical guidelines.
- Current Progress in PrEP and Other HIV Prevention Technologies
A webinar (1/29/15) describing the current state of PrEP and offering information on other HIV prevention methods and key resources for keeping up to date on advances in HIV prevention.
- Getting to Zero: Reducing HIV Incidence through Screening, Treatment, and Prevention
An online learning module (4/30/15) describing HIV incidence, the current recommendations for screening as a means of prevention (especially among high risk populations), and the effectiveness of biomedical interventions.
- HIV Prevention in the South: Reducing Stigma, Increasing Access
A publication presenting four strategic elements for preventing the further spread of HIV among vulnerable populations in the South.
- Transgender Women and Pre-exposure Prophylaxis for Transgender Women: What We Know and What We Still Need to Know
This publication outlines risk factors for HIV infection among transgender women and names the lack of research done on the efficacy of PrEP among this vulnerable population.
- Best Practices in HIV Prevention: Translating Innovation into Action
An online course offering seven "best practices" to be implemented into clinical practice to end the HIV epidemic among gay and bisexual men and transgender women.
- Patient Handouts: "Do It Daily" (Kitchen)
- Patient Handouts: "Do It Daily" (Bathroom)
- Patient Handouts: "Do It Daily" (Bedroom)
A set of handouts designed in response to the lack of awareness about PrEP while surveying people in populations with active HIV transmission.
- HIV Testing
This CDC website provides a background and overview for testing, including discussion of the importance of testing and guidelines for testing sites.
- PrEP in the Real World: Clinical Case Studies
A webinar (4/30/15), presenting case studies that illustrate clinical challenges in caring for patients eligible for PrEP, and discussing controversies regarding PrEP management.
- Effective Interventions: HIV Prevention that Works
This website provides extensive resources on evidence-based HIV prevention strategies, and includes information on biomedical interventions, public health strategies, behavioral interventions, structural interventions, and social marketing.
Engagement in Care (Linkage and Retention)
- Navigating the Care Continuum: The Next Frontier for Providers
Bharucha, F., Makadon, H. J., Sale, S., Wheeler, C., Yoest, A., Salmon, K. (2012). Navigating the care continuum: The next frontier for providers. Becker's Hospital Review.
Responding to recent increases in cost of care without a corresponding increase in quality, this 2012 article by Farzan Bharucha, Harvey J. Makadon, MD, Shannon Sale, Cole Wheeler, and Adurey Yeost, calls for providers to move toward collaborative networks built around optimizing outcomes and costs through focus on the continuum of care.
- The Promise of Outreach for Engaging and Retaining Out-of-Care Persons in HIV Medical Care
Bradford, J. B. (2007). The promise of outreach for engaging and retaining out-of-care persons in HIV medical care. AIDS Patient Care and STDs, 21, S85-91.
This 2007 article by J. B. Bradford summarizes research performed at sites throughout the U.S. on implementing outreach models to increase engagement and retention in HIV care, particularly for under-served populations. Bradford argues for improved and expanded use of outreach-based interventions.
- Retention Challenges for a Community-Based HIV Primary Care Clinic and Implications for Intervention
Coleman, S., Boehner, U., Kanaya, F., Grasso, C., Tan, J., Bradford, J. (2007). Retention challenges for a community-based HIV primary care clinic and implications for intervention. AIDS Patient Care and STDs, 21(9), 691-701.
A 2007 study on factors causing loss to follow-up among HIV-infected patients at Fenway Community Health. The piece, written by S. Coleman, U. Boehmer, F. Kanaya, C. Grasso, J. Tan, and J. Bradford, recommends strategies for retention, including patient surveys, and risk assessment tools to determine more inventive outreach interventions for high-risk patients.
- Engagement in Care: From Cascade to Continuum to Control
A webinar (5/20/15), discussing the state of engagement in HIV care in the United States, describing individual and population health implications of HIV care engagement, and discussing approaches that health centers and HIV/AIDS service organizations can take to measure and improve engagement.
- Continuum of HIV Care among Ryan White HIV/AIDS Program Clients
This HRSA report outlines higher levels of engagement in HIV care and the improvement in viral suppression rates among recipients of Ryan White HIV/AIDS Program funding.
- Optimizing Linkage, Engagement, and Retention in Care for Adolescents and Young Adults of Color
A webinar (4/14/15) in which experts in engaging LGBT youth in Boston share their experiences linking youth of color into care.
- Data to Care: Improving Treatment Outcomes & Addressing Disparities
A webinar (3/11/15) exploring how health departments and HIV clinics can partner to coordinate outreach efforts, and discussing how surveillance data can be used to address disparities and ensure access to care.
Navigating the ACA and Ryan White
- HIV Health Reform
This website, hosted by the AIDS Foundation of Chicago, provides education to ASOs and CBOs about the opportunities that exist through the Affordable Care Act to improve health care access for people with HIV. Maintains a blog, sends a weekly newsletter, and hosts regular webinars.
- CAEAR: Health Care Reform Checklist for AIDS Service Organizations
This website, hosted by Communities Advocating Emergency AIDS Relief (CAEAR), provides a checklist of recommendations to ASOs for successfully navigating changes involved in the ACA.
- The Affordable Care Act: Implications for AIDS Service Organizations and People Living with HIV/AIDS
A webinar (10/30/14) examining the impact of the ACA on the lives of people living with HIV/AIDS and the work of ASOs/CBOs, and discussing how ASOs/CBOs can adapt to the changes within the ACA
- Out2Enroll: Reaching and Connecting LGBTQ Communities with ACA Coverage Options
A webinar (1/21/15) reporting on the influence of the ACA on access to health care for LGBT people, and describing best practices for ASOs to reach, assist, and connect LGBT communities to ACA coverage options.
- The Ryan White HIV/AIDS Program: What is its Role Now and Where is it Headed?
A webinar (10/21/14) exploring the role of the Ryan White HIV/AIDS Program and how it might change in the future, and providing recommendations on how to adapt to the changing policy and funding landscape.
- The Affordable Care Act and HIV/AIDS
This website, hosted by the U.S. government, provides an overview of changes brought on by the ACA impacting the health care of those living with HIV/AIDS, and includes links to many other resources.
- The Ryan White Program and Insurance Purchasing in the ACA Era: An Early Look at Five States
An issue brief (4/14/15) outlining key findings in five states that implemented the ACA insurance purchasing program.
Organizations and Centers Providing Technical Assistance
- HRSA HAB TA Website
This website serves as the central source of TA and training resources for the Ryan White HIV/AIDS Program. Their website includes webinars, reports, fact sheets, TA websites, an event calendar and more.
- ARCW Solutions: Sustainability Through Sector Transformation
A program of the AIDS Resource Center of Wisconsin, ARCW Solutions offers support in care delivery, increasing revenue and financial performance, and mergers and strategic partnerships.
- The National Technical Assistance Center for Contracting, Reimbursement and Enrollment with Medicaid and Marketplace Insurance Plans (CRE)
The National Technical Assistance Center provides TA to core medical providers around successfully contracting with Medicaid, Medicaid Managed Care, and/or Qualified Health Plans, and provides TA around establishing or expanding third-party billing and reimbursement.
- Access, Care and Engagement (ACE) TA Center
The ACE TA Center helps Helping Ryan White HIV/AIDS Program recipients and subrecipients support their clients, especially people of color, to navigate the health care environment through enrollment in health coverage and improved health literacy.
- AIDS United
AIDS United works to end the AIDS epidemic in the U.S. through strategic grant making, capacity building, policy/advocacy, TA, and formative research, and runs a Sector Transformation Initiative which provides grants and technical assistance to organizations working on organizational restructuring, merger, or responsible closure.
- Johnson & Johnson/UCLA Health Care Executive Program
The Health Care Executive Program provides a unique opportunity for executives of community health centers and ASOs to participate in an eleven day intensive management training session, held annually at UCLA Anderson School of Management. The cost for ASO leader participation is covered by Johnson & Johnson.
NMAC provides HIV/AIDS education and advocacy work focused on racial justice and health equity, and hosts the annual US Conference on AIDS each year, which is attended by many ASO and CBO leaders.
- National Alliance of State & Territorial AIDS Directors (NASTAD)
NASTAD's website includes extensive resources on policy advocacy, health care access, prevention, and health equity.
- The National Quality Center (NQC)
The HRSA-funded National Quality Center provides quality improvement services and technical assistance to Ryan White-funded organizations.
- CDC HIV/AIDS Capacity Building Branch
Through this site, the Centers for Disease Control and Prevention (CDC) provides free training and technical assistance to organizations and communities to help them strengthen their HIV prevention capacity.
HealthHIV has multiple ASO/CBO support projects, including financial management TA/training, the ASO/CBO Leadership Training and Certificate Program, and more.
Other Resource Libraries
- TARGET Center: Resource Library
Serves as the central source of technical assistance (TA) and training resources for the Ryan White HIV/AIDS Program, includes webinars, reports, fact sheets, TA websites, an event calendar and more, and filters resources based on topic, population, and/or grantee status.
- CDC: HIV/AIDS Resource Library
The Centers for Disease Control and Prevention's (CDC) page, featuring an HIV/AIDS glossary, reports, fact sheets on HIV among special populations, podcasts, webinars, and more.
- AIDS Action Committee: Health Library
Provides extensive, up-to-date information about HIV treatment and wellness, including reports on advancements in HIV/AIDS research and information about coinfections and related illnesses. AIDS Action sends out a monthly Health Disparities Update e-newsletter.
- The Kaiser Family Foundation: HIV/AIDS Resource Library
Includes reports, fact sheets, issue briefs, and other helpful policy tools put out by KFF on HIV/AIDS, the Affordable Care Act, and other health policy topics.
- ACE TA Center: Resources, Tips, and Tools for Enrolling Ryan White HIV/AIDS Program Clients in Coverage
This site outlines resources for anyone helping Ryan White HIV/AIDS Program (RWHAP) clients apply for health insurance, lists the enrollment steps, and offers links to related resources, tips, and tools.
- Positively Smoke Free
A free online program for smokers living with HIV who are looking to quit. Their website features tips, tools, videos, links, and a discussion board to interact with others in the community.
- PrEP Facts: Women's Sexuality and HIV Prevention
A closed facebook group for women seeking more information on sexuality and HIV prevention. The page promotes communication and respect among women.
This site hosts a free, anonymous e-card service, allowing HIV-positive people to disclose their status to recent partners and encourage them to get testing. The website also offers information to senders and recipients on how and where to get tested.
- State HIV/AIDS Hotline Directory
Hosted by HRSA, this directory allows people living with HIV across the country to find their state's HIV/AIDS toll-free hotline. Hotline staff connect callers with agencies that can help determine what services they are eligible for, and locate where they can get them.
- Ryan White HIV/AIDS Medical Care Provider Interactive Map
Hosted by HRSA, this interactive map connects HIV-positive people across the country who are low-income or do not have insurance, with care and services provided by Ryan White HIV/AIDS Program medical providers. Services include HIV testing, HIV medical care, housing assistance, and substance abuse and mental health services.
- Partnership for Prescription Assistance (PPA)
PPA is a free service connecting consumers to patient assistance programs and patient advocates, and offering information on HIV/AIDS programs, Medicare, Medicaid, service animals and devices, and more.